Trials Into Testimonies

When your tests become testimony...Alhamdulillah.   This is where I was Tuesday:

No covid, but I am on a covid unit because I have rhinovirus. Apparently rhinovirus affects regular people just like a cold, but for people with severe asthma or copd, it's been attacking their lungs exactly like covid, and they've been seeing a rise in deaths. They have also seen an increase in dual infections with people with severe asthma and copd...they have been presenting with both covid and rhinovirus. 

Thankfully, I have tested negative for covid, but the rhinovirus is hitting my lungs very hard. It basically keeps them inflamed and seems to make them resistant to the usual medical treatment. They have already sat with me and had the conversations regarding my "choices", should it come to that...do I want to be resuscitated,  do I want to be intubated if I can no longer breathe on my own, who my medical proxy is in the event that i can no longer make my medical choices for myself.  

They also found that due to working so hard from the asthma, my heart is now leaking proteins, so they are concerned that I am close to having a heart attack.

In full disclosure..only a few of you know..but about 3 weeks ago..my doctors also discovered that I have a mass in my lung, in addition to some smaller nodules.  I am assured that we are going to follow up on this, but also that as a non smoker..my risks are very small for lung cancer.   GOD got this y'all!  Besides, HE ain't ready for me AND Aja's foolishness up in the same place again, lol.

Like I said..all of this was Tuesday..Now its Friday and here comes the Testimony...I'm breathing on my own again...Alhamdulillah!  And the leak in my heart has stopped for now.  We will follow up on that.  So ya girl is going home today ❤  I'll be on full bedrest for a few days, as I still get too winded standing up or walking..and I'll be on breathing treatments every 2-4 hours..but I can do it from home.  Thank You so much to everyone who has prayed over me, called, message, texted, left comments, etc.. I've seen them all and I have so much gratitude.  Thank You.  I Love You

*taps the mic* Is This Thing On?

So one of my friends suggested that I write, and it reminded me that I actually do have this blog...I've just become lazy about updating it.  But I realize that writing really does bring me pleasure, and it helps me to clear a lot of sh.... junk out of my head space...so it wouldn't be such a bad idea to start back up.  Because lately...my head space has been a bit janky.

I guess I should do a sort of intro, even though I've had this blog for like ugh...10 years or so now (if you scroll back, you can read old posts) I know there may be some new readers who are new to me, new to my crazy life...and the crazy stories I tend to tell.

I'm Lisa...Lis...LiLi...all of the above.  52 years old.  I live in Boston.  Born and raised here, but I spent the years of 2008-2017 in South Carolina (mainly in Columbia) and also consider that home.  I moved back to Boston to be closer to my family and support system, as my health was getting worse (severe asthmatic, congestive heart failure and spinal stenosis)

I'm Mama to 3.. Aaron is 32.  Happily married to Laura.  Aaron was born with 2 types of malignant cancer and a syndrome called Epidermal Nevus Syndrome (where the body reproduces different types of cancer).  He also has Asperger's, which is on the Autism spectrum.  He was also born with some congenital birth defects.  His first years were basically one big hospital visit, between specialists, chemotherapy,  surgeries and emergency visits.  But he is doing awesomely now.

Next up is Aja Dawn.  Aja is forever 23.  Her life was taken at the age of 23 on June 13, 2014 in an act of Domestic Violence.  She was an amazing young woman, and I'll probably share a million stories about her.

The last of my biologicals is Imani.  She is 20.  We were told when was 2 that she would diagnosed as bipolar by the time she was 7.  Unfortunately, it presented so severely that by the time she was 5, we already had that diagnosis by one of the top children's psychiatry units in Mass.  She's had her ups and downs.  As I'm sure those who love someone living with bipolar disorder know, you have your good and bad days.

And lastly...we have Thing 1 (Bryson- 3 y/o) and Thing 2 (Na'eem 2 y/o).  They are the grandsons that I am raising.  Both have some health challenges that keep me pretty busy.  Bryson was born prematurely with gastroschisis (his intestines were outside of his body) He spent approximately 6 weeks in the NICU, where he had surgery to insert the intestines.  But as a result of the birth defect, he has short bowel syndrome.  He is also non verbal autistic.  In the last 6 months, he has learned SOOO many words though!!  And he uses them. A LOT.  Na'eem is my lil Mr Personality.  He loves to entertain.  Severely asthmatic since about 6 months old, he has spent a lot of time in the hospital, but it doesnt slow him down at all.

Whoooo... that's a lot of reading huh??  Warning...I'm wordy asf.  Oh yeah, and I cuss.  I'll try to ease up on the cussing in the blog though.  But I definitely talk alot.  I just wanted to give ya'll a backstory into who I am as a person and where I'm coming from as a woman, as a writer and as a human being though.  Some entries may be wordy like this..some may be short n simple.  

I still have to write an intro about my "forever kids".  They are not mine by birth, but I claim em as mine and I love them like my own, so I talk about them a lot.  Anyway....deuces for now.....✊🏼✌🏼